(For treatment side effects and complications only)
The NHS in your local area is looking at ways of further improving care for people with blood cancers. Blood cancers include:
These proposals relate to the blood cancer services provided at Aintree University Hospital and Clatterbridge Cancer Centre – Liverpool.
These services are mainly used by people from Sefton and Liverpool, plus some people from Knowsley, West Lancashire and other areas.
We are keen to hear your views:- You can read about the proposals on this page or by downloading this leaflet. - Watch a recorded presentation (16 mins) where Dr Lynny Yung explains the proposals. (The same presentation was used in the 3 online engagement events we held.)- You can give your views on the proposals by completing our survey between Monday 10th May and Sunday 20th June 2021.
There are more than 100 different types of blood cancer and we are learning more about them all the time. All blood cancers are caused by gene changes/faults (often called ‘mutations’). These gene mutations vary between different types of blood cancer.
Even when two people have the same type of blood cancer caused by the same gene mutation, one person’s body may just respond better to the treatment. That means it may be better at treating cancer in one person than the other.
As researchers continue to learn more blood cancers, treatments will become even more sophisticated and more effective. It will be easier to offer each patient the treatment that is likely to work best for them, based on their gene mutations and their own biology.
This is easier in larger teams that treat more people with cancer so health professionals have greater opportunity to become very specialist in particular aspects of blood cancer.
That’s why we’re proposing to bring blood cancer experts from two NHS organisations together to work as one team with greater specialist knowledge.
There are currently two separate blood cancer teams in Liverpool
That didn’t matter in the past when much less was known about blood cancers. As researchers learn more about different blood cancers, however, it’s important that health professionals can develop very detailed, specialist expertise.
It isn’t possible for individual health professionals to have this very specialist knowledge about every type of blood cancer. Similarly, small teams can’t develop this level of knowledge as they aren’t large enough for individual members to specialise in that way.
Health professionals can develop that level of knowledge, however, if they work as part of larger teams. This allows them to specialise in particular types of blood cancer and focus on caring for patients with those conditions, while also retaining good knowledge of other blood cancers.
*NOTE: There were 157 patients admitted to Aintree University Hospital for blood cancer care in 2019/20. (There were 422 admissions, as some patients were admitted several times during the year.) Under the proposals, some of these 157 patients would be treated in Clatterbridge Cancer Centre - Liverpool. The rest would continue being admitted to Aintree University Hospital. Due to the COVID-19 pandemic, 2019/20 is the most recent year for which figures are available.
These proposals aim to provide even better care in future to people with blood cancers:
Patients would be cared for by health professionals who specialise in their type of blood cancer in a way that isn’t possible in a smaller team
Patients would have access to a wider range of clinical trials of new treatments. Many can only be provided by larger, more specialist blood cancer teams with a greater number of patients.
We could offer new services and wraparound support that can only be provided by a larger team, including a dedicated cancer assessment unit that helps patients avoid A&E. Other examples could include treatment at home and more daycase services so people don’t need to stay in hospital overnight. Patients could also get more psychological support & practical advice on living with cancer.
Blood cancer services would be more resilient and better able to recruit and retain the best people, who generally prefer working as part of larger, more specialist teams.
Most patients would still be seen and treated at their current site. However, some people who need inpatient care would be admitted to Clatterbridge Cancer Centre – Liverpool instead of Aintree University Hospital. The two hospitals are around 5.5 miles apart.
This would affect around 157 people a year and they usually arrive at hospital by ambulance. We have looked at travel times to see how this would affect people, including patients’ relatives and other visitors. For most people, the journey time isn’t significantly different than travelling to Aintree University Hospital. Some people in Sefton would have a longer journey, however.
We are particularly keen to hear your views on this and any suggestions you have.
Where patients came from in 2019/20:
Impact on journey time for those admitted to Clatterbridge Cancer Centre - Liverpool instead of Aintree University Hospital:
Journey times calculated using Google Maps and based on journeys from GP practices in each CCG area
We explained why we think these changes would benefit patients. Here are a few scenarios showing what the proposals would mean for future patients.
Lydia has a low-grade lymphoma and none of the usual treatments are working. Her care team at Aintree University Hospital think she may be suitable for a clinical trial. The trial isn’t available at Aintree so they need to refer her to the blood cancer service at Clatterbridge Cancer Centre – Liverpool. This takes a few days and then she has to be assessed by a consultant at Clatterbridge to see if she’s suitable for the trial.
Lydia could be considered for the trial right from the start of her care. She would still be cared for by the same people at Aintree but, if her treatment wasn’t working, she would be able to access the clinical trial straight away. She wouldn’t need a referral and the consultant leading the clinical trial would already have been involved in her care. As a result, she could join the clinical trial more quickly. Her care could be carefully planned from her diagnosis to maximise access to novel treatment only available through trials.
Bridget is feeling very unwell after chemotherapy. She calls NHS 111 who advise her to go to A&E. She spends a few hours being assessed by the A&E team. They decide to admit her to hospital. She spends 24 hours on an acute medical admissions unit, along with patients with other conditions including pneumonia and heart disease. The next day, she is seen by an acute oncology nurse who knows how to deal with her side-effects.
Bridget can access 24/7 support from a specialist cancer nurse via The Clatterbridge Cancer Centre’s hotline. She phones them when she feels unwell. The nurse assesses her over the phone to check whether she is well enough to manage her side-effects at home. The nurse advises Bridget to come to the Clinical Decisions Unit at Clatterbridge Cancer Centre – Liverpool, which specialises in urgent cancer care. She is immediately assessed by a specialist cancer team who know how to deal with her side-effects. She has rapid access to any specialist cancer care she needs.
Tony needs CAR T-cell therapy, a very specialist treatment that helps the immune system to recognise and attack some cancer cells. This treatment is not currently available in Cheshire and Merseyside so Tony has to go to Manchester to receive it.
Creating one blood cancer service by bringing the teams from Aintree and Clatterbridge together would mean it was big enough to provide treatments like CAR T-cell therapy that can only be provided in centres with a large enough number of patients and clinicians. Patients could be treated in Liverpool instead of having to go to Manchester.
Salim has acute lymphoblastic leukaemia (ALL), a type of blood cancer. He needs to stay in hospital for very intensive chemotherapy. He also receives other drugs that help kill the cancer cells in his blood. This treatment makes Salim extremely vulnerable to infection, and he needs rapid access to experts if he suddenly becomes unwell. Although the care he receives in Aintree University Hospital is very good, the care team is quite small.
Although it’s further from his home, Salim is admitted to the specialist Clatterbridge Cancer Centre – Liverpool where he has his own air-filtered room, instead of being on a shared ward. This reduces his risk of picking up an infection. He also has rapid access to a team that specialises in ALL and knows exactly how to care for him if his condition suddenly worsens. Being in a specialist cancer hospital means he also gets all the wraparound care he needs, including clinical therapies and psychological support. Salim can get plenty of rest, undisturbed by other patients, and his family can visit him any time (once pandemic visiting restrictions ease). The ward also has a shared social space where he can chat to other patients when he likes.
Andrezj, 19, was diagnosed with lymphoma after going to A&E with breathing difficulties. As he is under 25, the team at Aintree University Hospital need to refer him to the specialist Teenage & Young Adult service at Clatterbridge Cancer Centre – Liverpool so he can get full access to clinical care and wraparound support specifically designed for young people with cancer. This service isn’t available at Aintree.
As services at Aintree and Clatterbridge are now provided by the same team. Andrezj doesn’t need to be referred to Clatterbridge. In future, the specialist Teenage & Young Adult service could also run an outreach clinic at Aintree University Hospital so Andrezj could have his treatment there while also benefiting from wraparound care and peer support that the service provides, including the ability to chat to other young people with cancer.
Aintree has four consultants. One of them specialises in myeloma. If she gets ill and is unable to work, there is nobody who can cover her clinics or provide specialist myeloma care. If she left, the service would have no myeloma specialist until a new consultant had been recruited.
The new service would have 16 consultants, including a team specialising in myeloma. If one consultant gets sick or leaves, there are other myeloma experts who can cover their clinics. It will also be easier to recruit a replacement as doctors generally prefer to work in larger services where they can learn from and support each other.
Clatterbridge Cancer Centre – Liverpool has been specially designed to reduce the risk of infection, with single en-suite rooms, isolation facilities and air filtration systems that remove harmful particles from the air.
This is particularly important because people with blood cancer are among those most at risk from infections. Many blood cancers affect the immune system. Treatments such as chemotherapy and stem cell transplant – also called bone marrow transplant – also affect the immune system.
Blood cancer patients may find it hard to fight infections that are relatively harmless to most people so it’s extremely important that hospital facilities are designed to reduce any possible risk.
Every inpatient has their own spacious en-suite room, with a nurse call, smart TV and entertainment system, and comfortable pulldown furniture so relatives can stay overnight after the COVID-19 pandemic.
As a dedicated cancer hospital, everything is focused around the needs of people with cancer. There are no patients being treated for other health conditions.
We’re keen to hear from people with blood cancer, their relatives/carers, health professionals and others with knowledge or experience of blood cancer. We’d like to know:
You can give your views by completing our survey by Sunday 20th June 2021. [The survey has now closed. An archive copy is available here.]
You can find out more by watching a recorded presentation where Dr Lynny Yung explains what the proposals would mean and why we think they would improve care.
We held three virtual engagement sessions where people could find out more about the proposals, ask questions and give their views:
If you have any questions:
“Under these proposals, patients would get all the benefits of a more specialist team and all the benefits of local care close to home. People with blood cancers would get better access to the most specialist care and new treatments and clinical trials. Most of our patients would still be cared for in their nearest hospital. Some could even be treated at home.”
“We provide excellent blood cancer care at Aintree but we’re limited because we’re a small team based in a major acute hospital. As part of a large team managed by a specialist cancer hospital, we could provide even better care at Aintree, where we would still see the vast majority of our patients. Aintree would still have inpatient and emergency care for people with blood cancers but patients who need more complex care would be able to benefit from amazing facilities five miles away in the new Clatterbridge Cancer Centre, which has been specially designed with every aspect of cancer care in mind. People with blood cancer could also avoid A&E and get urgent access to specialist cancer care in a dedicated assessment unit at Clatterbridge.”